By Hind Yousef
Clinical & Health Psychologist
There are around 10 thousand autistic adults and children in Jordan and the prevalence of Autism Spectrum Disorder (ASD) has been increasing in recent years. While much attention has been given to the challenges faced by individuals with ASD, it is also important to consider the impact of having an autistic child on the mental health of the parents.
Rewarding Yet Challenging
Having an autistic child can have a profound impact on parents’ mental health. It is often a life-changing experience that requires a great deal of adjustment and adaptation. Parents of autistic children may experience a range of emotions, from guilt and sadness to frustration and exhaustion. But the experience of raising an autistic child can be both rewarding and challenging.
The impact of autism on parents can vary depending on the severity of the condition and the age of the child. For parents of young children with autism, the diagnosis can be particularly challenging. These parents may struggle with feelings of guilt or blame, wondering if they did something to cause their child’s condition.
The stress of caring for a young autistic child can also take a toll on a couple’s relationship, leading to feelings of isolation or strain. For parents of older children with autism, the impact may be different. They may have had more time to come to terms with the diagnosis and develop coping strategies. However, they may face new challenges as their child enters puberty and adolescence.
As their child becomes more independent, parents may worry about their adolescent’s safety and future and struggle to find appropriate services and accommodation as their child transitions into adulthood.
Prioritising Mental Health
Regardless of age, parents of autistic children often face a range of ongoing challenges. They may need to advocate for their child’s educational and medical needs, navigate complex systems of care and manage their child’s behaviours and emotions.
This can be physically and emotionally exhausting, leading to feelings of burnout and stress. It is important for parents of autistic children to prioritise their own mental health and well-being.
This can include
Seeking support from family and friends
Participating in support groups or therapy
Practicing self-care activities such as exercise, meditation, or hobbies
The impact of having an autistic child on parents can be significant. It can be a challenging and emotional journey, as parents grapple with the diagnosis, navigate complex systems of care and manage the ongoing demands of caregiving.
With the right support and resources, parents can learn to adapt and thrive, finding ways to manage their child’s needs while still taking care of themselves and their families. Despite all of this, many parents of autistic children find great joy and fulfillment in their role as caregivers and are grateful for the unique gifts and strengths that their children bring to their lives.
Did You Know?
It is estimated that more than 1 in 100 people are on the Autism Spectrum
A diagnosis of Autism Spectrum Disorder should only be made by a qualified healthcare professional after a thorough evaluation of the individual’s symptoms and behaviours. It is crucial to approach the diagnosis with sensitivity and understanding, as Autism Spectrum Disorder can have a significant impact on an individual’s life and the lives of loved ones
What is Autism?
Autism is a neuro-developmental disorder caused by differences in the brain that affects communication, social interaction and behaviour. To diagnose if a child has Autism Spectrum Disorder, a child must display at least two of the following four symptoms:
1. Excessive and repetitive motor movements, object use, and speech
2. A strong preference for sameness, inflexible routines, or ritualised behaviour
3. An abnormally intense interest in a particular subject, or an interest marked by an unusual focus
4. Heightened or reduced sensitivity to sensory stimuli
Support
It is also important for parents to communicate their needs and concerns with healthcare professionals to ensure that they receive the support and resources they need. In addition, there are resources available for parents of autistic children that can help support their mental health. These can include parent training and education programmes, such as:
Al Hussein Foundation’s National Center for Learning Disabilities. The Center developed programmes to help with the communication, socialisation and education of children with autism
The Applied Behavioural Analysis (ABA) programme provides individualised therapy for children with autism
Queen Rania Foundation for Education and Development offers a programme for children with autism
You can contact Hind Yousef at [email protected]
